Wednesday, April 22, 2009

Aubrey's CHD Journey

After Austin was born, we were told by the doctors, that if we were to ever get pregnant again, there was a 5-10% chance of having anther baby with heart defects. We found out we were pregnant for the 2nd time in April 2007. We were very nervous! We were getting ready to move, trying to sell our house, and my husband just lost his job with Ford. The baby and I were followed closely. We moved in July 2007, 200 miles from "home". I had to find another OB. Several people referred me to Dr. Priddle. He followed the baby very closely. At 19 weeks we found out we were having a baby GIRL, and that her heart looked fine. WHAT A RELIEF!!!! I was soooo happy.
I wanted a second opinion, so we had another fetal echo done at Cincinnati Children's Hospital at 26 weeks. Aubrey had developed mild pulmonary stenosis. Oh no. I was so upset. So again at 28 weeks, another fetal echo, mild pulmonary stenosis and mild aortic stenosis. We were very worried. At 32 and 34 weeks we were seen again, and things had gotten worse for our baby girl. At 36 weeks, the doctors decided that we needed to have the baby at 38 weeks and she would spend time in the NICU.
On December 14, 2007 Aubrey Rose was born at 11:56 AM weighing 7lbs 1 oz. She looked just like her big brother. She was taken to the NICU and monitored. She did well.... on December 15, Aubrey was taken to Cincinnati Childrens to be monitored a lil closer. Aubrey did great, and on December 18, Aubrey was able to come home.
We were together as a family for Christmas!!! Aubrey's next appointment was on December 27, for an echo. Dr. Beekman felt that he needed to do a Cardiac Catherization to check a little closer on her pulmonaries. He ballooned them out on December 28. Aubrey was able to come home, but was monitored with an echo every 2 weeks. Her next cath was on March 11. The Plan was to balloon out her pulmonaries again. This time, it didnt go as planned. Aubrey went into cardiac arrest 2 times in the cath lab and once while she was in the CICU.... while I was holding her precious little hand.
Dr. Beekman explained how sick Aubrey was. He said the only thing to save her life was to place stents in her pulmonaries. On March 12, Dr. Beekman placed 3 stents in her pulmonaries. 2 in her right and 1 in her left. Aubrey had another echo before she was released to make sure her pulmonaries were functioning well with her stents. On March 18 Aubrey was released again. On April 3, Aubrey had a post-op echo. The cardiologists couldnt believe it. Aubrey had developed a severe coarctation on her aorta, in 2 1/2 weeks. Aubrey had emergency surgery on April 7. Aubrey's next cath was on June 24. Her pulmonaries were ballooned out again. And Dr. Beekman said she needed another open heart to fix her aorta.
Dr. Egthesady explained what he was going to do. He was going to patch her aorta. Basically as far down as he could go. So on July 24, she had her next surgery. We were told that it was going to be a very rough night for her. But AUBREY was a trooper, not one desat, nothing.
Aubrey is followed very closely by Dr Beekman at Cincinnati Children's Hospital.

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